By Lev Facher @levfacher ASHINGTON — A young woman whose father founded a biotechnology company in pursuit of a treatment for her rare disease will be front and center on Tuesday night for President Trump’s address to a joint session of Congress.
Beforehand, Crowley and her father, John, will meet with Trump in the Oval Office to discuss rare disease treatments.
Following Megan’s Pompe diagnosis and that of her younger brother Patrick four months later, John Crowley founded Novazyme, which developed protein engineering technologies aimed at treating diseases like Pompe.
Novazyme, which was acquired by Genzyme in 2001, was eventually successful in creating an enzyme replacement therapy for Pompe disease, which Megan and her younger brother are still treated with today.
Lev Facher can be reached at firstname.lastname@example.org Follow Lev on Twitter @levfacher