(Photo: Win McNamee, Getty Images) University of Notre Dame sophomore Megan Crowley attended the address in support of healthcare issues and to raise awareness for rare diseases.
The illness affects the function of organs and tissues, especially muscles, and impacts one in 40,000 in the U.S., according to the National Institute of Health.
But thanks to the deliberate efforts of her father, who created a company to work toward a cure, Crowley survived.
Address to Congress, Denisha Merriweather, education, Megan Crowley, melania trump, Pompe Disease, President Trump, rare diseases, scholarships, University of Notre Dame, University of South Florida, News It sure looks like this #TeamTrump member plagiarized her Ivy League dissertation 5 things you need to know Tuesday Team Trump is having typo trouble BREAKING NEWS· 9:38 am EST March 1, 2017 · Editors, USA TODAY News· 10:30 pm EST February 28, 2017 · Susannah Hutcheson CAREER PATH· 7:59 pm EST February 28, 2017 · Susannah Hutcheson Here's what the Women's March D.C.
looked like to college women There's already a campaign to impeach Donald Trump Georgia Tech's swim team does drills in the snow News· 7:48 pm EST February 28, 2017 · Bartholomew D Sullivan, USA TODAY News· 3:30 pm EST February 28, 2017 · Scott Behrens, University of Wisconsin-Madison News· 3:26 pm EST February 28, 2017 · Mitchell Wellman, University of Virginia After backlash for hailing HBCUs as school choice 'pioneers', DeVos pivots her message For many small colleges, it's a challenge just to stay open Watch Ellen gift college scholarships to an entire senior class The 'Factual Feminist' debunks stats about sexual assault and the wage gap Student loan debt now totals over $1.3 trillion Powered by WordPress.com VIP Mailing Address: Uloop Inc.