European Organisation for Rare Diseases

Non-governmental organization

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The European Organisation for Rare Diseases is a non-governmental patient-driven alliance of patient organizations and individuals active in the field of rare diseases, that promotes research on rare diseases and commercial development of orphan drugs.

READ MORE FROM https://en.wikipedia.org/wiki/European_Organisation_for_Rare_Diseases
Did an interview regarding rare disease day today

Did an interview regarding rare disease day today

It's Rare Disease Day! I present to you my stud of a cousin. 1 of only about 800 with CDG. Video in Comments.

It's Rare Disease Day! I present to you my stud of a cousin. 1 of only about 800 with CDG. Video in Comments.

Rare Disease Day is Friday!

Rare Disease Day is Friday!

Rare Disease Day is February 28!  And you should care!

Rare Disease Day is February 28! And you should care!

Rare Disease Lobby Day

Rare Disease Lobby Day

Rare Disease Day is aimed at raising awareness.

Rare Disease Day is aimed at raising awareness.

Wear that you care!

Wear that you care!