Meet Megan Crowley and Denisha Merriweather. - From USA TODAY College
(Photo: Win McNamee, Getty Images) University of Notre Dame sophomore Megan Crowley attended the address in support of healthcare issues and to raise awareness for rare diseases.
The illness affects the function of organs and tissues, especially muscles, and impacts one in 40,000 in the U.S., according to the National Institute of Health.
But thanks to the deliberate efforts of her father, who created a company to work toward a cure, Crowley survived.
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